I haven't posted in a while. To be more honest, I haven't really had anything to post. I have been stuck at home due to my health that is continuously getting shittier by the days. My most extreme symptoms I am experiencing have nothing to do with my already diagnosed conditions. Over the past few weeks, I have met with all of my specialists and have a few tests scheduled. I probably won't be given a concrete diagnosis though until late May when I will finally be seeing a rheumatologist after a referral and recomendation given to me by a few of my doctors. They each have their own theories as to what is wrong, but I will not be posting anything regarding a possible diagnosis until they have a definite answer. Part of this is because I don't have the spoons to explain their reasoning for each possible diagnosis. For now though, I am very dependent on my parents and Clark and am using wheels more than legs due to the nature of my symptoms. We are also using a counterbalance harness more now instead of a bracing harness. On the days I can walk, a CB harness is more helpful and easier for Clark to help keep me balanced properly and it is lighter than his bridgeport. We aren't leaving the house much though for long periods of time without my wheelchair. My current wheelchair is 40lbs and I am unable to lift it in and out of my car. A new one isn't a option right now, but hoping it may be one after rhuematology appointment (hopes that insurance will cover it finally 🙏). I'm focusing on using this time at home to start getting our YouTube channel up and running soon as both I and my parents believe vlogging and creating videos that bring awarness to chronic conditions will be a good stress reliever. I'm working on editing some footage now while I am recovering from a minor surgery. I'll be releasing a few pre-recorded channel intro videos sometime this coming up week.
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